Having jettisoned (or been jettisoned by - I think it depends on your sense of timing) the neurologist with the god complex, and failing over the course of five weeks to be able to find one who can see me in any reasonable amount of time, I backed up and reconsidered.
I'll be seeing a general practice physician on June 14 who has a reputation for appropriate referrals for the management of pain, as well as listening to his patients and engaging in actual dialog.
Catch me please, as I swoon...One of the things I need him to do is continue my prescription for physical therapy.
In the meantime, I still have one refill of neurontin at way too low a dose to treat neuropathic pain, but I take it anyway to maintain my blood level, because I intend to ask the new doc to increase the dose and we'll see if I'm one of the 30% of people who get any relief from it.
I continue to research alternative therapies for pain and edema, trying some which, even if they don't work, still won't hurt me.( You wouldn't believe what some folks do... )
The journey is good.
It's even better if you stop long enough to take it one step at a time.